Kevin's Progress Updates

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Kevin's Progress Updates

Post by Admin on Sun Apr 02, 2017 10:54 pm

Hey everyone

Every several months or so, I plan to update this thread with my progress. I think it may help someone to see that healing, while very slow, is possible with gastritis.

I originally messed up my stomach in Fall 2013. So it has been about 3.5 years at the time of me writing this, and I am about 80% healed. I am much better than I used to be, but not exactly where I want to be - as some foods still bother me, just not as bad as they used to.

Feel free to ask questions and I will try to respond when I can!

Thanks
Kevin

_________________
Remember! The pain we feel now is temporary. Nothing lasts forever, including Gastritis Very Happy. So suffer well, and be a light to others.

"Bless those who persecute you; bless and do not curse them. Rejoice with those who rejoice, weep with those who weep"

Medical Disclaimer: While every effort is made to provide accurate and useful information, no one on this site is representing themselves as a medical professional. Always consult with a medical professional for assistance before modifying their orders or making changes to your lifestyle/health regimen.

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Re: Kevin's Progress Updates

Post by Admin on Fri Apr 20, 2018 11:30 pm

Hi Everyone

It has been awhile - quite some time. Many things have changed, and my stomach has improved but STILL not healed. As long as I avoid trigger foods, I'm fine. But trigger foods are still a killer.

So - I made a personal point to really try all the diagnostic tests I could out there. It was actually very beneficial, and we found some things that MAY have me on the road to recovery !!! Please read on, and consider doing a similar battery of tests.

At a modern, young (honestly, getting someone under 50 makes a HUGE difference...) Gastroenterology practice - consider getting:
1) Complete bloodwork (for celiac especially, and amylase and lipase, full liver panel)
2) Complete abdominal ultrasound (rule out kidney, gall bladder, and pancreas issues)
3) Endoscopy, with biopsies to check for bacteria, lesions, cysts, and tissue quality

I had all of the above, and it was very useful in ruling out more serious issues for me. Unfortunately EVERYTHING came back negative, except some irritation in my upper stomach. The gastroenterologist literally said "I'm sorry, there's no more tests I can give you. Whatever is causing the irritation isn't coming from inside you .... but something YOU ARE INGESTING!!"

That was the lightbulb moment. He then referred me to an Allergist for food allergy testing. After getting a skin scratch test for about 30 different foods that are a part of my diet - I developed a positive reaction to PEANUTS and a couple other foods !!! Which is crazy, because I have had a peanut butter sandwich every day for probably the last decade lol................ Not exaggerating at all.

There is a chance this is a false positive, so we are doing further bloodwork to be sure. But, if I really am mildly allergic to peanuts - it is very possible that a mild, prolonged state of allergic inflammation in my stomach is the cause of all my issues.

I'm personally leaning towards Oral Allergy Syndrome (OAS) - which is when you have seasonal allergies from pollen and because some foods look like pollen on a molecular level, your body reacts to those too. More information here https://www.uptodate.com/contents/oral-allergy-syndrome-beyond-the-basics

I have bad seasonal allergies to tree pollen, and everything I tested positive for was in the "related to birch pollen" category - so it is possible. Usually OAS does not trigger symptoms past the throat, but I pulled up some research articles showing inflammation in lower esophagus and stomach in a few cases. The section on "Allergic Eosinophilic Gastroenteropathies" seems like something my experiences could relate to -> https://www.medscape.com/viewarticle/708187_2 .

I checked with my gastro, and he said they didnt test the endoscopy biopsies for white blood cells / eosinphills - which my allergist says are often in high concentration in the throat and stomach of people eating something they are allergic to.

All of these tests provided what appears to be valuable info and may have helped me find the real source of my issues. If nothing else, I have at least ruled out more serious cancers and abdominal disorders.

I'm glad I did them, and would recommend anyone else struggling to find a diagnoses to consider both an allergist and gastroenterologist as well.

I will update this page if there are any new developments as I remove those potential allergens from my daily diet.

Thanks
Kevin

_________________
Remember! The pain we feel now is temporary. Nothing lasts forever, including Gastritis Very Happy. So suffer well, and be a light to others.

"Bless those who persecute you; bless and do not curse them. Rejoice with those who rejoice, weep with those who weep"

Medical Disclaimer: While every effort is made to provide accurate and useful information, no one on this site is representing themselves as a medical professional. Always consult with a medical professional for assistance before modifying their orders or making changes to your lifestyle/health regimen.

Admin
Admin

Posts : 42
Reputation : 1
Join date : 2017-03-30

https://livingwithgastritis.forumotion.com

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